Wednesday, June 13, 2007

Things I learned today

  • If you drink a ton of water in an effort to stay calm and in control, you will need to pee - probably more than once.
  • The predictive text option on my phone does not recognize the word 'Aspergers'.
  • Strawberry ice cream is the ultimate medicine.
  • You give amazing advice and support and good wishes and at a time when otherwise we might feel somewhat alone, I know that we are in extremely good company. Thank you.

27 comments:

monica said...

so that was it? The 'A' word? How do you feel? Keep strong and remember that he's not different this afternoon from what he was this morning. YOu are trying to help, and you are.

Does it make sense?

Rachel said...

Ali I'm sending you a virtual hug now and if I see you tomorrow I will give you a real one.

Mark is your precious boy and your love will see him - and you -through.

julie said...

Was thinking of you today and wondering about the outcome of your meeting. Aspergers is a scary word when it is applied to your child but Monica put it so well by saying that this doesn't change Mark. The word becomes less scary with time and it will help others to understand and help Mark. At the moment it's raw and painful but it will get better xxx

Raesha D said...

My nephew has Auspbergers (sp?)....I'd be happy to give you my sister's email if you'd like to email with her.

kirsty said...

We're still here, Ali, and we wil be tomorrow as well.

Megan said...

Hugs and tons of love being sent by cyber mind control your way.

It's a linguistic term, Ali, useful for understanding and supporting, that's all. It's not a box.

You're doing such a great job. There'll be so much to work through in the coming months, but you really are doing such a great job. And no doubt you'll be reminded a zillion times that some of the world's best, most creative, minds were, and are, Aspergers. I bet he's one smart kid. And cute with it.

www.bigbucketgirl.typepad.com said...

Oh what to say. Does it make it better having been? Perhaps it won't help but I've worked many years with children in mainstream schools who have Aspergers and they are an absolute delight to be around. Monica is right, Mark is Mark. Full stop, and if i could hug you both through the screen for being that way then I would. (((xxxxx)))

kirsten said...

yeah, i could use some homemade strawberry ice cream anyday.

make that everyday... :)

labels are scary - but it will help you, and more importantly, him, be able to understand himself better.

dottycookie said...

I'm sending cyber hugs to you and your family. If I could give you more strawberry ice cream in person, I would. Will be thinking of you.

capello said...

hey! a diagnosis! woo hoo! (finding the silver lining over here. we are "high-functioning-autism and sensory integration disorder")

TinkerBlue said...

Mark is still your boy. We are still here and still giving support.

kate said...

Dear Ali,
thinking of you. I have sent you an email to your hot mail address. My son has just been diagnosed with Aspergers so if you would like to chat I'll be happy to
take care
kate

Di said...

Passing on positive vibes!! Monica's comment is spot on!

Victoria said...

I'm glad for you all Ali that you now have a diagnosis - its your step-off point. From here on things get better as you know what you are dealing with and can do what needs to be done for your son.

Read, read, read is what I can suggest for now. That phrase "Knowledge is Power" is so apt for us who have to be advocates for our kids when they aren't the round peg in the round hole....

Many kisses and hugs to you guys. You are going to be just fine.
xxxxx

sarah said...

I can't add anything to the great advice given in the comments above as I know nothing about what your going through. I am sending virtual love and best wishes to you and your family though.

samantha said...

I really don't know what to say, except just to let you know I'm here, thinking about you and will be always...

Jo said...

Sorry, didn't mention the peeing side effect!
As others have said you are both the same as you were before the meeting and if having a diagnosis helps the professionls support you then good.

Sending hugs
x

Lucy said...

Hope it all went okay, despite the constant peeing. Thinking of you and offering support from afar.

Kim said...

Strength for the journey - you are among friends...

Rose Vintage said...

Thinking of you Ali..and ditto to every comment and hug on this post

J
x

Amy said...

hugs and strawberry ice cream

julia said...

What more can anyone add? We are all thinking of you, Mark will have a happy life because he has such love and support from his family, what more could you give a child? I do agree that knowledge is power, and it also gives you the strength to fight for all the help your child deserves.

Julia x

rebecca said...

A name doesnt change him or your love for him - we will all still be here to listen when you need us to. X

nuttnbunny said...

here we are...

tiel said...

hugs and smiles to you.

Louise said...

Oh Ali - I sort of know how you feel as my 2 oldest were diagnosed with a rare genetic condition about 4 years ago that is unfixable and leaves them permanently medicated. I vividly remember walking out of the doctors rooms - I was completely gobsmacked to say the least. But now it's part of our life and we have learnt to manage it (with a few scary hiccups along the way) and they are still the same gorgeous little girls.
My nephew has Aspergers, my neighbour's son has Aspergers and they are very bright and funny boys who just process things a bit differently. I know you will work out how to manage this and that Mark's life will be wonderful.
In the meantime you know you have loads of support coming to you from the blogging world and beyond. Big hugs from us..

Penny said...

((( Hugs )))