tag:blogger.com,1999:blog-25185166.post6492286167956072179..comments2023-06-27T12:31:23.299+00:00Comments on domesticali: Syndromes, Spectrums and SymptomsAlihttp://www.blogger.com/profile/11723377593068712400noreply@blogger.comBlogger40125tag:blogger.com,1999:blog-25185166.post-796955006693920722007-03-24T14:35:00.000+00:002007-03-24T14:35:00.000+00:00Ali,my son also has some problems with groups of c...Ali,<BR/>my son also has some problems with groups of children and he will never be a footballer either.<BR/><BR/>But I am hoping that with some physiotherapy and help from the scholl to make life easier for him too!<BR/><BR/>Hang on in there xSamanthahttps://www.blogger.com/profile/02985431102030002392noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-63704247886782171642007-03-21T10:36:00.000+00:002007-03-21T10:36:00.000+00:00You've made the grey thing in the room is much sma...You've made the grey thing in the room is much smaller now.<BR/><BR/>It's true that no one outside of your loving household will love your boy as much as you. For that he is really really lucky, and that will certainly make his life easier and more fulfilling for all of you...<BR/><BR/>It's just wonderful that he is alive and well. XXAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-34685496273001754852007-03-19T13:07:00.000+00:002007-03-19T13:07:00.000+00:00hiya! just wanted to let you know that we have a h...hiya! just wanted to let you know that we have a herd of elephants here(what with our 3!!!). I'm all for graffiti-ing them! Making them a quilt would take too long, but spray paint? or merely throwing cans of the kids favourite colours over it! What would Marks choice be!?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-66365917830192275982007-03-15T07:27:00.000+00:002007-03-15T07:27:00.000+00:00hey, can you scoop up some elephant poo and send i...hey, can you scoop up some elephant poo and send it to that teacher! Does she have children?????!!!!<BR/><BR/>Anyway, you will know what is best to do because your his mum. Go with confidence with the advice and decisions you choose and you won't go wrong.<BR/><BR/>And like JO said we all have elephants....just promise to keep on making great stuff for us to see when you can.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-8349662537172216712007-03-15T01:16:00.000+00:002007-03-15T01:16:00.000+00:00All my prayers are with you. My little brother ha...All my prayers are with you. My little brother had a lot of developmental problems growing up. Lots of heartache and difficulties, but, right now as we speak, he is studying to be a chef at the top U.S. culinary school, with flying colors in New York. It was a rocky road but I beam with pride when I think about all he's overcome. Sending big hugs to you from across the globe...deehttps://www.blogger.com/profile/02463190134622765903noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-74110425472106355492007-03-14T17:43:00.000+00:002007-03-14T17:43:00.000+00:00i'm so sorry that you have such a large elephant t...i'm so sorry that you have such a large elephant that you have to deal with right now. and you're right, parenting is the HARDEST job ever!!!!!! i come to work for a vacation.<BR/><BR/>here's a big hug and hopes that things start to get a lil bit easier for your family!elizabethhttps://www.blogger.com/profile/16970441661208173184noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-74276775225209415082007-03-14T14:49:00.000+00:002007-03-14T14:49:00.000+00:00just checking in to make sure you're ok...just checking in to make sure you're ok...nuttnbunnyhttps://www.blogger.com/profile/07432059241825312897noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-5890587877183640822007-03-14T04:02:00.000+00:002007-03-14T04:02:00.000+00:00Hi there,You know, all the agonising you are doing...Hi there,<BR/>You know, all the agonising you are doing over this just goes to show what a good mother you are.<BR/>Please keep your chin up, as I think you are going to be in for a pretty rough ride with tests (many of which will probably be inconclusive) and what not until you find ant type of answer.<BR/>Just remember, you wouldn't change him for the world!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-8791373285614262122007-03-13T22:24:00.000+00:002007-03-13T22:24:00.000+00:00Even in your frustration, your love really shows t...Even in your frustration, your love really shows through. It sounds like you have a good attitude about everything - the labelling, accepting help, but wanting what's best for him. One of my kiddos shows some sensory issues. I'm NOT suggesting you homeschool or anything, but it's nice for me knowing that he is here with me learning in his own way and not having to fit in.<BR/><BR/>I still remember that toy you posted - the one you had made for him with all the latches on it? You clearly know your child best. I hope you are able to feel comfortable with how all this plays out. I was an occupational therapist in my pre-mommy life. I loved each of my students and all their uniqueness. God bless. And thanks for sharing your elephant with us.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-59828717176135935362007-03-13T11:23:00.000+00:002007-03-13T11:23:00.000+00:00Ali, I just want to say that you sound like such a...Ali, I just want to say that you sound like such a loving and gifted mother and that Mark is so lucky to have you. And you are so lucky to have him! <BR/>Diagnoses can be problematic and even controversial, but they are helpful when dealing with the system.Strikkelisehttps://www.blogger.com/profile/07702775139240341972noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-67052208657043230122007-03-13T08:40:00.000+00:002007-03-13T08:40:00.000+00:00I think we all show the bits we want to on our blo...I think we all show the bits we want to on our blogs, and we all have an elephant of some kind in the corner of the room.<BR/>I'm sure the love you give your son is the important thing, not whether or not you have a label for other people to useAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-73152058573301905132007-03-13T03:51:00.000+00:002007-03-13T03:51:00.000+00:00I'm so sorry you have to deal with such a hard pro...I'm so sorry you have to deal with such a hard problem with no clear answer. Not being a mother, I'd feel disingenuous trying to offer too much guidance there. But I am a speech-language pathologist and have some training in autism spectrum disorders. I'm not sure how your med system works in England, but please contact me if I can offer any assistance/advice/support/clarification as you muddle through. Whatever you do will be the right thing.feather nesterhttps://www.blogger.com/profile/17778477468709093359noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-78919995749516885072007-03-13T01:08:00.000+00:002007-03-13T01:08:00.000+00:00My thoughts are with you, Ali! Have faith that you...My thoughts are with you, Ali! Have faith that you know what is best for your boy, and don't hesitate to seek a second (or third!) opinion. Finding the right help is half the battle.Melissahttps://www.blogger.com/profile/08243680270894091670noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-20739606605375184862007-03-12T21:56:00.000+00:002007-03-12T21:56:00.000+00:00I think schools are pretty lame when it come to an...I think schools are pretty lame when it come to anyone that is not the perfect child that fits the needs of a teachers way of teaching. And in my opinion there are very few children that fit that description out there, expecially boys that need to be more physical than sitting quietly behind a desk for 6 hours. I think when you find others that share the same issues, a support group that can help and encourage you as well as be a shoulder when you need, really helps.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-65291230290976466532007-03-12T21:18:00.000+00:002007-03-12T21:18:00.000+00:00Hi, just wrote you an email... too many things to ...Hi, just wrote you an email... too many things to say!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-22713827690518138722007-03-12T19:57:00.000+00:002007-03-12T19:57:00.000+00:00Ali, I feel for you. You might want to have a look...Ali, I feel for you. You might want to have a look at www.mindroom.org when you have a minute. It's a charity which helps families and children with all learning difficulties, including Asperger's, etc. (I'm involved with it, and the founder is a pretty impressive person who set it up because of her own family experiences). If you have any specific questions, let me know and I might be able to help or put you on to someone who can.Cornflowerhttps://www.blogger.com/profile/17779286635989616330noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-8878818580947418312007-03-12T18:36:00.000+00:002007-03-12T18:36:00.000+00:00Oh Ali, your post made me cry as I know all too w...Oh Ali, your post made me cry as I know all too well the feelings you expressed!! I'm so sorry about the insensitivity you've experienced with school....I know it's hard! :) Matthew's "Aspergers" is always in the back of my mind for anythings that goes on...school or otherwise socially. We have days that I feel like we are floundering and other days that produce great joy. As a parent you do the best you can and give your child lots of love, which you are obviously an expert at!! <BR/><BR/>Hopefully you will find someone (pediatrician, therapist, whatever) that will at least provide you with helpful direction if not necessarily answers. we still don't really have answers...Matthew isn't officially diagnosed as his doctor says he is "dancing around the symptoms of aspergers" and she also says his age (still so young) is a factor. But at least she has provided us with some direction with therapy and advice to deal with some of his quirks. <BR/><BR/>lots of xoxoxo's to you!! AmyCrabby Amyhttps://www.blogger.com/profile/11466077282467657573noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-88993288724007102532007-03-12T16:54:00.000+00:002007-03-12T16:54:00.000+00:00I know that there are far more qualified blog frie...I know that there are far more qualified blog friends who can offer useful words of advice and pearls of wisdom. But my thoughts are with you and your family at this challenging and worrying time and I know that you will do the very right thing for Mark because you already do.carolinehttps://www.blogger.com/profile/13341420269474997227noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-33716046506894605072007-03-12T16:42:00.000+00:002007-03-12T16:42:00.000+00:00Oh Ali, I am so sorry to read your post. I know fr...Oh Ali, I am so sorry to read your post. I know from bitter experience the absolute panic of coming to terms with the fact that your child might have need of a ‘diagnosis’. It’s a bottom-has-just-dropped-out-of-my-world kind of feeling and it is not something you would wish on anyone. The only thing that I would say about pursuing a label for Mark is that in some ways it might make life easier for him. A label won’t change how anyone who knows and loves Mark feels about him but it might encourage others to be more accepting, tolerant and understanding. You are absolutely right that you know him best. I wish I’d had your attitude at the beginning of our journey - you hold tightly onto that in the coming months and it will be your talisman against the white noise that comes from information overload, well-meant advice, misunderstanding and conflicting ‘professional’ intervention. Well done for outing the elephant - I hope it starts to shrink and fade into a little grey mouse that can be swiftly dealt with. Needless to say, you have a lot of people out here who are wishing you well. Take care xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-14371942065008494212007-03-12T16:22:00.000+00:002007-03-12T16:22:00.000+00:00Ali, I'm so sorry about the teachers poor way of e...Ali, I'm so sorry about the teachers poor way of expressing her worries to you!! <BR/><BR/>I think you should forget about the "labels" (your son will always be your wonderful son), try to think of going to specialists as something positive. In the long run it might help your son understand himself better. My brother got an ADHD diagnosis + medicin the day he turned 25 (he decided to see the doctor himself after 25 years of being different). My mum got her diagnosis at the age of 53. A big relief after years of struggling. <BR/><BR/>A big hug from mesyko kajsahttps://www.blogger.com/profile/10033199440373493483noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-80045269391595465732007-03-12T14:34:00.000+00:002007-03-12T14:34:00.000+00:00Get that elephant out there, girl, and let's all h...Get that elephant out there, girl, and let's all help you clean it up (or is that clean up after it? Shovels out, girls!) My DP has a... well... he's sort of... well... different. I can't label it in front of the husband because he hates labels, but David has dyspraxia. What used to be clumsy child syndrome. He's awkward, un coordinated, his work is messy he is not organised, making friends is difficult and he breaks my heart sometimes because at 9 he has no intention of ever growing up into a fully- functioning adult if he can help it. but he is my DP and I love him. And, yes, it took the teacher asking me some questions to make me pursue the fact further (a little more delicately than yours, by the sound of it) Now DP has had some physiotherapy, has a list of things he and I need to look out for and remeber and a friend who knows that DP is never going to play football, but is cracking at make-believe. This friend keeps DP with the other boys and, yes, we are feeling better. My elephant is sky blue with a pink table cloth on. You can still tell it's there, but at least from a distance it looks a better colour. Do what you need to for your child and get what you can done for him. You need to choose your paint colour and face that elephant. And, like good bloggers should, we'll be right here waiting for you. Wish you the best, <BR/>Jo XXXAngel Jemhttps://www.blogger.com/profile/08915392156232711695noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-36687716300741002962007-03-12T14:13:00.000+00:002007-03-12T14:13:00.000+00:00Glad you decided to let you elephant out of the ba...Glad you decided to let you elephant out of the bag. I'm sorry for the harsh words of a frustrated teacher but I hope they lead to the easier path through life that you've imagined for your kiddo.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-37730326395515332112007-03-12T12:19:00.000+00:002007-03-12T12:19:00.000+00:00Oh Ali, your post today breaks my heart. It makes...Oh Ali, your post today breaks my heart. It makes me so sad because you are doubting your confidence as an incredibly capable and loving mama. Hang in there. A friend once told me that we get the kiddos we get because we are the mamas that they need. Have confidence in that you are the mama that he needs/needed/will always need. You are perfect for him. Feel free to post away on your elephant. I for one will read and listen. Blessings to you today friend.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25185166.post-20469549751184190052007-03-12T08:40:00.000+00:002007-03-12T08:40:00.000+00:00Well, there are teachers, and there are teachers. ...Well, there are teachers, and there are teachers. Some are nurturing, supportive, understanding, and then it seems there are some like your son's. All children are different. Yes, sometimes there are "labels" and often they help, but when "labels" are thrown around, they are limiting and constraining. Sounds to me though like your son could do no better than to have a wonderful mother like you Ali. Take care.Johttps://www.blogger.com/profile/00275471428731828826noreply@blogger.comtag:blogger.com,1999:blog-25185166.post-50730313800146066282007-03-12T07:41:00.000+00:002007-03-12T07:41:00.000+00:00ali, a big hug...we all have elephants. there's o...ali, a big hug...<BR/>we all have elephants. there's one here at our house, too.<BR/>thinking of you.Anonymousnoreply@blogger.com